Why is it so hard for my family to understand that RA hurts. It's not like I JUST got the disease. I've had it since I was 5. My entire body hurts. It hurts to walk, it hurts to go upstairs, and lately with the costochondritis it hurts to breathe. When I go anywhere with my family, they just don't seem very understanding. They're literally walk a mile ahead of me, while I'm limping to try to catch up. That's after we've parked as far away from our destination as possible, it seems anyway. Even though I have a handicap placard. And, then when I mention my pain, it's a complete shocker to them. Or they see my difficulty breathing and ask what's wrong with me.
I'm laying in bed, AGAIN, while my family is out enjoying the day. When I said that I was going to lay down, my mom said, "well at least you have tomorrow off of work". Yes, but that day off isn't going to miraculously make it all better. All I want is for people to try to understand. Usually when I try to talk about my pain, or my doctors appointments, she changes the subject. I am completely alone in this battle.
On my day off tomorrow, I'm going to see my primary care doctor. I can't get into see my rheumatologist for a couple of weeks. I need to talk about possible pain management specialist and my depression over all of this. This disease is consuming my life. I have things I want to do. But, not while I'm hurting. I can't and won't live like this for the rest of my life.
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